DoD does WHAT?

It is fascinating that the DoD clearly believes it owns and can use the personal health information of 12 million active duty military personnel for whatever purpose it decides. In this case, the DoD is paying a for-profit corporation to do research on active duty military personnel without their consent.

Maybe when you join the military you lose all privacy and Constitutional rights. I don’t know, I'm not a lawyer. If so, that is a steep price to pay to serve your country: losing all health privacy for yourself and your relatives forever. Do those who join the armed forces know they are signing up to become medical guinea pigs? Do they really understand the consequences for their futures and their families futures?

Many questions abound:

• Are the electronic records adequately secured? What a rich target: 12 million health records! What if enemies hack the privately held data base to learn about key military leaders?

• Will Phase Forward continue to use and sell the records for other purposes as HIPAA authorizes? Other data management corporations (such as Thomson Medstat) the government pays to perform fraud and waste audits obtain millions of health records that they later aggregate and sell to employers without anyone's consent.

• Furthermore--this is clearly medical research without informed consent. That is simply unethical and illegal. The US signed the Declaration of Helsinki after WW II because Nazis did human research without consent. Back then America recognized the need for informed consent before research takes place. Today, the codes of research and medical ethics still require patients to give informed consent before personal records can be used or disclosed. Why is this project not being done with informed consent when new 'smart' electronic consent tools could make it easy, cheap, and fast to obtain informed consent and explain all the risks and consequences?

Review this article from the Washington Post's Government Inc. Blog for more information:
Data Mining for DoD Health

Military health forum envisions clinical analytics -- by Peter Buxbaum

David Winn is right, when you sign up for the military, you have to do whatever they say.

The problem is that the Administration and the federal government has the same thing in mind for every American--no control over access to PHI.

The payers think they own our PHI and should be able to do whatever they want with it--even though it's both illegal and unethical. That is why industry is pressing Congress to pass an HIT bill without consumer control over access to PHI. BUT---people will lie or not participate in electronic health systems if their data is used without consent---which means we will never get the kind of research we want because the data analyzed will be incomplete and flawed.

Americans just want to be asked for consent for research and be sure that HIT systems are safe and secure.

View Full Article